Welcome to Living With Myelo!
If you have found your way here it is possibly because you are looking for some support or perhaps you just want to feel like you are not alone.
I created this blog for that very reason. My husband was diagnosed with Myelofibrosis (a rare blood cancer) in 2009 and has managed his condition for six years. A young man of 36 he was told he had 8 to 10 years to live. Devastating news for a newly married couple especially since this is a condition that usually hits people in the later years of their life. We were left confused, traumatised and feeling completely isolated.
As many of you know it isn’t just the patient who suffers in situations like these. Family and friends are also deeply affected. They are often the ones who it hits the worst as nobody is really looking out for them.
Having lived with this disease alone for so many years we now feel it is time to speak out. Give it a voice and support those who like us sometimes feel like they are floating alone in the sea, bewildered by what is happening. We also hope to have a laugh along the way too – when life gives you lemons and all that!
We hope you enjoy our blog and we also hope that you feel compelled to share your stories with us too. You can contact us by leaving a comment on one of our pages or filling out a contact form.
P.s I also post many of my blogs on The Huffington Post UK. Check out my posts here.